MND Musings - This is a record of a chronic illness, Primary Lateral Sclerosis, a Motor Neurone disorder, like a slow MND / ALS. My body may not be very cooperative; in fact it's become as stubborn as a donkey, but I'm not dead yet.
Friday, 10 July 2009
The Big Day out
Waddesdon Manor on first sight
Yesterday we spent a very good day with John and Jan. We met up in the gardens of Waddesdon Manor. Jan and John live just down the road from the monument to the Rothschild banking fortune, and so have often been there; in fact before John got MND it was their favourite walk. But we'd never visited it. It's now owned by the National Trust, which does well for disabled visitors: admitting the carer free, and providing a lot of reserved parking.
Anyway, they say a picture is worth a thousand words, so here are some.
Discussing the conundrums of MND
John and Jan in front of the Victorian aviary
Beside one of the extraordinary organic sculptures, appropriately this one's a robin (but with a green breast).
In the rose garden. The roses had suffered in the rain, but the lavender avenues were beautiful.
In front of the façade, not of our house, thankfully, but the Manor.
It was a tiring day for all of us, but we enjoyed it. John's MND was diagnosed last autumn, but has already advanced further than mine. There's no denying it's hard, but they both have faith which gives them amazing peace.
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