Yesterday we had a very sociable day. In the morning we met Elizabeth Berner for coffee in Oxford. I never met her late husband, Tim, but wish I had. He also had MND, but had a different attitude from many of us. He disliked the way that MND is demonised and that campaigners play on the idea of victimhood. I must say I share his views, and in fact I owed the last word of my book to a letter of his. The illness is of course awful, but it can be an experience of good things such as beauty and compassion. The light shines in the darkness. That's why it can be redemptive. Time flew as we talked. It was so nice to hear about a man whom I have found an inspiration.
In the afternoon we went back to Stanford in the Vale to visit the annual summer Festival. We thought we'd spend an hour there, but in the end it was more like two and a half. It was non-stop talking of course, and good to meet so many old friends from the village. However I must confess I'm glad to have retired and to know that Dr Tim Rose will be taking over after the summer holidays.
MND Musings - This is a record of a chronic illness, Primary Lateral Sclerosis, a Motor Neurone disorder, like a slow MND / ALS. My body may not be very cooperative; in fact it's become as stubborn as a donkey, but I'm not dead yet.
Showing posts with label Stanford Festival. Show all posts
Showing posts with label Stanford Festival. Show all posts
Sunday, 14 June 2009
Friday, 12 June 2009
Hospitality
I'm happy to report that there is friendly life in Grove. Well, we knew that already, as our neighbours are still friendly despite building works on and off here, which must have been a tad annoying, and we'd been for lunch with Mandy and Charles in their riverside poustina. But today we went for coffee with Colin and Barbara, whom we'd met at the Vale Elim Church three weeks ago. This was our first social invitation from 'Grovers'. I went in my wheelchair and Jane took my stick so that I could get in. It's a significant landmark, being welcomed into someone's home.
After that we went on to the poustina, where Zoe, a friend from Stanford, who's had severe ME for 19 years, was having a holiday. Zoe and I have quite a bit in common, and so an hour passed quickly. She has come through a lot and remains amazingly positive. Jane came back with the dog to accompany through the village byways.
And so the weekend is here. In Stanford it will be the Festival (where this blog began). However I'm no longer vicar; and so it's over to others. Rumour has it that the new priest in charge and his family may be there. They're in for a treat. Even without the Red Arrows, who were booked in, but just a couple of weeks ago cancelled - something to do with not having enough fuel. Sounds like cuts in the defence budget to me. If MPs can't have moats, then the people can't have fly-pasts. So there!
After that we went on to the poustina, where Zoe, a friend from Stanford, who's had severe ME for 19 years, was having a holiday. Zoe and I have quite a bit in common, and so an hour passed quickly. She has come through a lot and remains amazingly positive. Jane came back with the dog to accompany through the village byways. And so the weekend is here. In Stanford it will be the Festival (where this blog began). However I'm no longer vicar; and so it's over to others. Rumour has it that the new priest in charge and his family may be there. They're in for a treat. Even without the Red Arrows, who were booked in, but just a couple of weeks ago cancelled - something to do with not having enough fuel. Sounds like cuts in the defence budget to me. If MPs can't have moats, then the people can't have fly-pasts. So there!
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