The official government response to asking for a National Strategy for MND appears to be to refer to the National Service Framework for Long-term conditions. I looked it up on the Department of Health's website, wondering what I'd find. It has an introduction by the Secretary of State, no less - John Reid!! Remember him? Yes, it's from 10th March 2005. What's it about? "This NSF sets 11 quality requirements to transform the way health and social care services support people with long-term neurological conditions to live as independently as possible. Although the NSF focuses on people with long-term neurological conditions, much of the guidance it offers can apply to anyone living with a long-term condition." And it made a commitment for implementation in 10 years. Now the new government is committed to its implementation 'over 10 years', I gather. That sounds like 5 years slippage. The point of the MND National Strategy was to make sure that GPs and care professionals are clued up on diagnosis and care for a disease which on average takes 14 months to diagnose and from diagnosis to death averages 17 months. 'Long-term neurological condition'? Come on - most MND patients die within a year and a half of diagnosis! Another 10 years sorting things out is cold comfort for them. Usually it's a rapid disease. I'm not typical. Neither is Stephen Hawkin. We actually do need a strategy. I do hope someone in government is reading and thinking about it. Long-term condition? Hardly ever. Long-term problem? Yes. And immediate challenge.