MND Musings - formerly Diary of a Donkeybody - This is a record of a chronic illness, Primary Lateral Sclerosis, a Motor Neurone disorder, like a slow MND / ALS. My body may not be very cooperative; in fact it's become as stubborn as a donkey, but I've found a dancing joy nonetheless.
Sunday, 20 June 2010
Tomorrow we're off to Westminster again - this time for a parliamentary reception for the MND Association. Thank you to all of you who signed the petition for a national strategy for MND. That's being handed in at No 10, at 2.30 pm, by Chris Woodhead (ex-head of Ofsted) and Jean Waters who wrote a commendation for My Donkeybody plus four others. We're just going to try and talk to MPs and their researchers, from 4 to 6. Sadly my MP, Ed Vaizey, who's a junior minister, has told me he's got a prior engagement. I suspect the other Oxfordshire MND delegates who are from the Witney area will have been told the same. Their MP is a rather senior Minister!