Tuesday, 24 June 2008
You DO look well
One of the strange things about having MND (ALS) is how well you look - well, in the earlier stages. There are some tell-tale signs, like the way you walk, or the way you talk, or the stiffness of your fingers, but you LOOK well. And people continue to tell you how well you look, when all the time what you're aware of is how things are beginning to fall apart. You can't avoid the fact that things are going wrong - inside. The amazing thing is how much a minute malfunction in your brain is destroying your previously healthy body.
Well, this is me, five years after diagnosis. What you can't see is I'm in a wheelchair. By now, I can't walk except holding on to my wife or my walking frame. But I reckon you'd say I do look well. And one of the things I'd say is that things don't look all bad from where I'm standing - sorry, sitting. Then I've got a long-drawn out form of the disorder (PLS), whereas most types don't give you long to be philosophical about life.