MND Musings - This is a record of a chronic illness, Primary Lateral Sclerosis, a Motor Neurone disorder, like a slow MND / ALS. My body may not be very cooperative; in fact it's become as stubborn as a donkey, but I'm not dead yet.
Wednesday, 23 December 2009
Christmas cold
Just to let you know: I'm not blogging at present - not because I'm too busy, but because I have a monumentally stinking cold, which is keeping both of us awake at night - with my hacking cough - and me fairly antisocial in the day - with this befogging streaming cold. It's not terribly good news with MND as you run the risk of chest infection. So you'll not get any clever comments about the irony of climate change and the present classic British winter. All I'll do is wish you a Joyfilled and Peaceful Christmas, as we celebrate the extraordinary event that transformed history.
Saturday, 19 December 2009
Struggles
We were delighted to discover that our visitor this weekend, Tony, is addicted to 'Strictly Come Dancing' - which means of course that instead of an evening of polite conversation we'll be able to indulge our Saturday night habit of ignorantly commenting on the merits of the dancing celebrities. Ever since I learned of Ricky Whittle's taking dancing lessons in preparation for the series and especially since Chris Hollins' highly entertaining Charleston, I've been rooting for Chris and Ola - in a passive sort of way (none of this wasting money on phoning). I'm told they're the people's favourite 'because of the journey', whereas Ricky's the judge's favourite because of his skill. Interesting that: reminds me of the phrase, 'not because of works lest any man should boast'.
Meanwhile on a rather different level of significance the fortnight-long UN summit on climate change has come to an end. I suspect the hope of achieving 'a legally binding agreement' at the end was always a pipe dream. With 190+ states wanting to protect their own interests, only the most optimistic idealist could have hoped for a universal agreement. And I've always wondered what sanctions in law would have been imposed on transgressors. So there are some people bemoaning the talks as a complete failure, while the UN Secretary General, Mr Ban told journalists: "It may not be everything we hoped for, but this decision of the Conference of Parties is an essential beginning." Robert Bailey, of Oxfam International, said: "It is too late to save the summit, but it's not too late to save the planet and its people."
I was interested by the quasi-religious terminology he used. Religious fundamentalism is an accusation often made by the climate sceptics, I've noticed. "We're not allowed to question the scientific orthodoxy on the subject," they complain. Well, personally, I agree with Ban Ki-moon in his determination to press on towards something more concrete. It seems to me that having brought China, the USA, Brazil, India and South Africa into the mainstream process was no mean achievement. And it's up to us to keep praying for our political leaders.
Meanwhile on a rather different level of significance the fortnight-long UN summit on climate change has come to an end. I suspect the hope of achieving 'a legally binding agreement' at the end was always a pipe dream. With 190+ states wanting to protect their own interests, only the most optimistic idealist could have hoped for a universal agreement. And I've always wondered what sanctions in law would have been imposed on transgressors. So there are some people bemoaning the talks as a complete failure, while the UN Secretary General, Mr Ban told journalists: "It may not be everything we hoped for, but this decision of the Conference of Parties is an essential beginning." Robert Bailey, of Oxfam International, said: "It is too late to save the summit, but it's not too late to save the planet and its people."
I was interested by the quasi-religious terminology he used. Religious fundamentalism is an accusation often made by the climate sceptics, I've noticed. "We're not allowed to question the scientific orthodoxy on the subject," they complain. Well, personally, I agree with Ban Ki-moon in his determination to press on towards something more concrete. It seems to me that having brought China, the USA, Brazil, India and South Africa into the mainstream process was no mean achievement. And it's up to us to keep praying for our political leaders.
Friday, 18 December 2009
Preparing for Christmas
Things at home are beginning to shape up for our family Christmas. It's quite a strange feeling, I must say, not being 'in charge' of a parish with three churches (not that I was in charge, I hope) for the first time for twenty years. Not that I'm missing the strain; probably just the power! And also, of course, the community. Anyway we're hoping our neighbours will be coming round on Tuesday for mince pies and mulled wine - which of course means Jane doing the preparations. And she's been dusting down our environmentally friendly artificial Christmas tree, which is now twinkling in the conservatory. And bringing out the crib. And putting up the cards on the trellis in the 'lift room'. And doing the shopping. And wrapping the presents. And... meanwhile I sit and watch, and think of past years when we did such things as a team and of how much is falling on Jane's shoulders now. But she doesn't complain. In fact she says she's enjoying it - and I believe she is. The truth is that we are celebrating the birth of the serving God - and gratitude makes drudgery divine.
Thursday, 17 December 2009
'The Shaming of the Strong'
I spent a gloriously miserable afternoon yesterday - thanks, Mary! Or maybe I should say miserably glorious. Jane wisely went out shopping while I finished the book Mary recommended, Sarah Williams' The Shaming of the Strong. It is a magnificent book - vividly written. It begins when Sarah has a scan which reveals that her longed-for third baby has a serious genetic abnormality which would mean it wouldn't survive birth. The medics expected that she would have an abortion, but she and her husband Paul decided against and instead, with all their family, loved the baby Cerian to the end - at a huge cost, physically, socially and spiritually. As you know, MND leaves you susceptible to emotion and at a lot of points I was very moved. All I can say about my weeping is that Jane didn't leave me enough handkerchiefs. And as for my wailing - you'd better ask Jess the dog, as she was the only witness. However if you want an affirmation of the preciousness and value of life - even of the weakest and most 'useless' person - you really ought to read The Shaming of the Strong. It's a beautiful book. By the way, I wasn't the only one who cried on reading it. Why do you think Jane went out?
Saturday, 12 December 2009
The other CAMRA
We had a knock on the door on Thursday evening. It was the Wantage Silver Band playing carols. We had a couple of verses of While shepherds watched and then a burst of Deck the halls with boughs of holly. It was pleasant having carols played live, rather than the canned musac type you hear so much. The trouble is with double-glazing you couldn't hear the carols; so we kept the door open while they were in the close.
We've not decked our hall yet for a good reason. When I worked on BBC Radio Oxford (actually I did a student attachment there during my ordination training, to be honest), the Sunday morning breakfast show ran a Campaign for a real Advent (CAMRA...). The point of course was to stem the tide of celebrating Christmas too soon. It was a bit like Canute, but I appreciate the sentiment. Of course it's especially hard when schools break up and naturally want to have carol services and nativity plays for their children. Not all do, of course - choosing instead to go down the politically perverse Winter Festival route. I'm glad that my grandchildren have had the opportunity to be an angel and even Mary at a school which definitely hasn't taken Christ out of Christmas. I heard of another production which included a policeman and a penguin. I have a feeling it wasn't about the nativity. Personally I think the waiting (and even some discipline) leading up to Christmas adds to the celebration, and when I was a vicar tried to keep carol services as near the day as was feasible.
Breaking my Advent fast, however, I enjoyed reading these top 3 classic kids' quotes from the school Christmas concert tonight regarding "what Christmas means to me": 1) "Christmas is not just about presents...it's about having fun as well!" 2)"I wake up early on Christmas morning and fill the house with Joy. Then I wake up mum and dad." 3) "I drink some Schloer. It tastes fizzy. That's what Christmas means to me!" Thanks, Ellie.
We've not decked our hall yet for a good reason. When I worked on BBC Radio Oxford (actually I did a student attachment there during my ordination training, to be honest), the Sunday morning breakfast show ran a Campaign for a real Advent (CAMRA...). The point of course was to stem the tide of celebrating Christmas too soon. It was a bit like Canute, but I appreciate the sentiment. Of course it's especially hard when schools break up and naturally want to have carol services and nativity plays for their children. Not all do, of course - choosing instead to go down the politically perverse Winter Festival route. I'm glad that my grandchildren have had the opportunity to be an angel and even Mary at a school which definitely hasn't taken Christ out of Christmas. I heard of another production which included a policeman and a penguin. I have a feeling it wasn't about the nativity. Personally I think the waiting (and even some discipline) leading up to Christmas adds to the celebration, and when I was a vicar tried to keep carol services as near the day as was feasible.
Breaking my Advent fast, however, I enjoyed reading these top 3 classic kids' quotes from the school Christmas concert tonight regarding "what Christmas means to me": 1) "Christmas is not just about presents...it's about having fun as well!" 2)"I wake up early on Christmas morning and fill the house with Joy. Then I wake up mum and dad." 3) "I drink some Schloer. It tastes fizzy. That's what Christmas means to me!" Thanks, Ellie.
Thursday, 10 December 2009
Eco-warriors and peace-warriors
you'd like to see my two marching grandchildren with their mum at the Wave march in London on Saturday. I'm immensely proud of them. And love them. I can't see why they weren't interviewed on TV. But that's not important. As Barack Obama has just said, 'We seek a better world for our children and grandchildren.' That's as true about the environment as about peace - for which he's receiving his Nobel prize. It sounds like an interesting discussion of the just war theory worked out in practice in the 21st century. I'd better concentrate. 'The desire for peace is seldom enough.' 'Peace entails sacrifice.' 'We lose ourselves when we compromise the very ideals we fight to defend.' It's quite something having such a thoughtful US President. 'Condemnation (of human rights' abuse) without discussion will do nothing to change the status quo.' Interestingly he's linked peace with the need to preserve the environment. 'No holy war can ever be a just war.' 'Adhering to this law of love - do unto others what you'd have them do to you - has always been the struggle of human nature.' 'Let us reach for the world that ought to be, the spark of the divine that lies within our souls.'
Wednesday, 9 December 2009
www.Chinese whispers
Well, isn't that extraordinary? Between Brian and Jane, we've established that the quote, “You have chosen the roughest road, but it leads straight to the hilltops,” actually comes, not from John Bunyan, but from John Buchan's Greenmantle, chapter 1. And yet everywhere on the web you'll find it attributed to Bunyan. HE DIDN'T WRITE IT! He did, however, write the following, when Christian is faced with the Hill Difficulty:
"This hill though high I covet to ascend;
The difficulty will not me offend;
For I perceive the way of life lies here.
Come, pluck up, heart; let's neither faint nor fear" (The Pilgrim's Progress p 41). John Buchan of course is best known as ex-diplomat and writer of 'The Thirty Nine Steps'. He's a bit non-PC for these days - but so, oddly enough, is John Bunyan. But none the worse for that.
Anyway interesting example of internet Chinese whispers it seems! And thank you to detectives Brian and Jane. Now the hunt is on for the comparison between death and birth (Nouwen? Vanier?)
"This hill though high I covet to ascend;
The difficulty will not me offend;
For I perceive the way of life lies here.
Come, pluck up, heart; let's neither faint nor fear" (The Pilgrim's Progress p 41). John Buchan of course is best known as ex-diplomat and writer of 'The Thirty Nine Steps'. He's a bit non-PC for these days - but so, oddly enough, is John Bunyan. But none the worse for that.
Anyway interesting example of internet Chinese whispers it seems! And thank you to detectives Brian and Jane. Now the hunt is on for the comparison between death and birth (Nouwen? Vanier?)
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