I have never had a book dedicated to me before, but there it is at the front: "Dedicated to Michael Wenham". I feel I have to declare the fact, because I am about to recommend it, and I'd hate anyone to feel they'd bought the book under false pretences. And of course I am chuffed and honoured! The book is Love Letter by Karen Jones. It's the third in her trilogy of "Babe's Bible" novels, following Gorgeous Grace and Sister Acts. For those unfamiliar with this unique series of novels, they interweave a contemporary plot with a storyline based on books from the Bible - a gospel, Acts, and an epistle.
Should you think that the Bible's is a different world from our own, this book might both confirm and change your view. It will change your view in that Karen shows how human nature and dilemmas remain the same. It will confirm your view as she demonstrates how the historical and cultural context differs. This is in my opinion is one of the great gifts of the whole series, and not least of Love Letter. In this case it gives a context for Paul's letter to the Ephesians and for 1 Timothy. There's no claim that we are given the context, but we are reminded that the letters are written in some particular context and it is foolish to read them as if there were none. Paul was writing to people he knew in circumstances that he knew about.
If that sounds rather serious and theological, be assured these books are far from dull and heavy. The second great gift that Karen has for us is bringing Bible to life. We realise that the characters who flit in and out of the New Testament were people with histories and hang-ups, personalities and problems, just like us. We discover that there were tensions within contemporary Judaism which spilled over into the developing Christian church, and that the Roman impatience with the Jerusalem hierarchy was well on the way to the ruthless destruction of the city in AD70, and it is within that broad context that Paul was writing to the young churches and church leaders. Karen vividly recreates the history and its impact on her characters.
However, as I said, the novels combine a contemporary plot with the Bible-based story. In fact that narrative is written by Grace Hutchinson, the woman minister, of the modern story. Events in her ministry are what drive her time and again to examine the Bible story and what it says to her and her friends today. She works in outer London and encounters the most painful of modern life-situations, both herself and in the area in which she lives. I don't want to spoil the plot at all, but for me once I had reached James and Marie in hospital of Love Letter I was hooked.
Perhaps the publisher's advertising line will provide enough of a clue. "Karen Jones' unique trilogy of contemporary fiction for women, based on the stories of women from the Bible, concludes in Love Letter. Grace and Chloe's lives have changed immeasurably over the last decade. Grace's talents and wisdom as a priest have been recognised and she receives a unique calling which will change her life for ever. Chloe, by contrast, discovers that there are still no easy paths through life and the decisions of various members of her family cause her to question the very bedrock of her faith. Grace and Chloe's relationship is about to be challenged to the core. Love, sex and betrayal, forgiveness and healing are once again the powerful themes in this heart-rending saga." I'd demur from the publishers in one detail: it's not only for women!
What I also admire about the three books is how Karen kept tabs on all the characters in the two strands weaving together, and progressed the storylines in parallel. I have to confess I was moved to tears at one point (my family would say that's not difficult!). I believe Karen started on the project in order to bring the Bible to life for a younger member of her family. I imagine she succeeded! For anyone who thinks the Good News of grace is only for the religious, sissies and the soft, this is the perfect antidote. It's seriously hard core and contemporary good news.
Have I any reservations? Only one - and that is the proof-reading, to put it kindly, appears to have been rushed. However that's being pedantic. After all New Testament Greek had no punctuation. And it didn't interfere with my enjoyment. Highly recommended holiday reading. (Darton Longman Todd, £8.99)
MND Musings - This is a record of a chronic illness, Primary Lateral Sclerosis, a Motor Neurone disorder, like a slow MND / ALS. My body may not be very cooperative; in fact it's become as stubborn as a donkey, but I'm not dead yet.
Thursday, 31 July 2014
Tuesday, 29 July 2014
On a personal note
I'm sure I'm not alone among people with MND in being amazingly grateful on a significant day which after diagnosis I'd never expected to see. Our 40th wedding anniversary, which we celebrated a week ago, was one of those big days. All our family made it home for the big day. When we returned from church, there was a brand new pergola built in the garden awaiting us, with a rose and honeysuckle to go with it. A celebratory lunch with a rather fine wine followed.
The week continued with a cream tea on Monday, a barbecue on Wednesday, and going to the ballet in London on Saturday. The last proved quite an adventure as we hadn't factored in an anti-Israel demonstration (no comment) which closed off all the roads from the A4 (which we were on) to Theatreland and created a tailback all the way to the Hammersmith Flyover (5 miles from our destination). Our satnav gave up the struggle, wanting us to continue the way we were heading, and so, with an hour and a half in hand, we made for the south - only to find Putney Bridge closed for repairs!
The long and the short of it is, having crossed south of the river, we made reasonable progress and arrived at The Coliseum a mere half hour late! There, at last, we found ourselves treated wonderfully well, whisked into a box in time to see the tail end of Act 1 and all of Acts 2 and 3 of Coppélia, which was great fun and lovely music. I must say that the staff at the theatre were consideration personified - and the facilities first-class. The ballet's going on tour in the autumn (the English National Ballet) and, if that's your sort of thing, I recommend it. It's a very optimistic production, beautifully but not fussily danced.
One more recommendation if you're looking for somewhere to eat in the Trafalgar Square area, try the St Martin's Crypt - accessible, atmospheric, reasonably priced and not too crowded. Our good friends from Wimbledon took us there after the performance.
And in case you're wondering, the journey home was a breeze - well, for me. Jane of course was driving, and I have to say she's a match for any London cabby!
Saturday, 26 July 2014
Post Falconer
I've not commented on the non-vote on the assisted dying bill in the House of Lords on Friday of last week. I have quite a bit of faith in the peers who will scrutinise the naivités of Lord Falconer's bill at committee stage, especially the likes of Baroness Finlay and Danni Grey-Thompson. I'm indebted to Ann for a link to Care not Killing's overview of post-debate comments - which say it all. http://www.carenotkilling.org.uk/personal-stories/voices-against-assisted-dying/
Voices against 'assisted dying'
Voices against 'assisted dying'
more: Personal stories, Medical Opinion, Personal stories/Medical Opinion, Opinion, Personal stories/Opinion, Falconer Bill, Personal stories/Falconer Bill, Disability, Personal stories/Disability
25th July 2014
The second reading of Lord Falconer's Bill caused people from all walks of life to explain why Lord Falconer's Bill would hurt them.
Among the many positive outcomes from the second reading of Lord Falconer's 'Assisted Dying' Bill was the steady stream of individuals sharing their personal reasons for opposing the Bill, from disabled and terminally ill people to carers and doctors. Here are just a few of the voices which have cried out against unethical, uncontrollable and unnecessary legal change.
We were among a number of newspapers and websites to publish the testimony of the late Christopher Jones, whose experience of despair when terminally ill caused him to reflect towards the end of his life on the valuable protection given him by the law; his widow Jenny shared her perspective in the Guardian alongside Dr Ian Basnet, who is tetraplegic. Similarly, we shared Matthew Schellhorn's account of caring for his terminally ill mother and his gladness at not having had to discuss the substance of Lord Falconer's Bill with her.
Disabled people, especially under the auspices of Not Dead Yet UK, have been at the forefront in recent weeks. The Times (£) interviewed 'Britain's best-known disabled actress', Liz Carr, who said 'some on my own medical team have underestimated my life expectancy. It is very common for someone with a disability to be told they are not likely to live until a certain age — and for them to carry on living.' Disabled blogger 'Spoonydoc' noted that few people acknowledge the inconsistency between supporting 'assisted dying' because of the experiences of people like Tony Nicklinson - who would not have qualified - and at the same time claiming that the Bill is closely defined and not open to extension. Hannah, who has inflammatory bowel disease, pursued a point also made by Spoonydoc: it is often wrongly assumed that those who oppose a change in the law have insufficient awareness or experience of these issues and would change their minds if they had.
In an engaging exchange, MND sufferer Pam and her friend Sian considered that a 'choice' like 'assisted dying' would put people in a 'constant position of having to say no. What we need is support for living, not support for dying', while Penny Pepper, writing in the Guardian, challenged readers by asking them to consider how their reaction to her suicide bid at 19 changes when they know that she had suffered from a chronic illness since childhood. Colin Harte, who for many years acted as carer to his friend Alison Davis, spoke to ITV (1m13) on a similar theme, picking up on the weakness of prognoses and people's ability to find purpose, value and hope in life - endangered by Lord Falconer's Bill.
Paralympian and crossbench Peer Tanni Grey-Thompson featured across the media, including the BBC (video), New Statesman and Telegraph. She noted that despite her many successes, 'people come up to me and say "I wouldn't want to live if I was like you".'
Composer and fellow Peer Andrew Lloyd-Webber discussed the point at which his mother had expressed a will to die - convinced that she had become a burden - five years before eventually dying of cancer, and his own battle with depression during which he 'actually got the forms for Dignitas. With hindsight, it was stupid and ridiculous, but I couldn't think what to do.' Fellow member of the Lords and senior palliative care physician Ilora Finlay spoke about her and her mother's experience, similar to Lloyd-Webber's and doubtless to countless others around the country - her mother, four years before her death from breast cancer, considered herself to be a burden but with love and support, she rediscovered her own value and enjoyed 'among the best [years] of her long life'.
Caring for thousands of patients over a career will give healthcare professionals a unique insight into the reality of dying, but many will also have personal experience of serious health issues. As GP Dr Mark Houghton told the Yorkshire Post, 'I am in the strange position of being a doctor who has known what it's like to be made miserable - suicidal even - by chronic pain.' Baroness Hollins, past president of the British Medical Association and the Royal College of Psychiatrists, spoke in the course of a tour de force for the Daily Mail of a friend with motor neurone disease who confided to her shortly before death of how precious his final months had been - having said six months before that he would gladly take a legally prescribed drug.
Lady Hollins was writing in part as a counterpoint to former Archbishop of Canterbury Lord Carey's recently declared support for a change in the law, and his views were soon shown to be out of step with those of serving faith leaders. The Bishop of Worcester, John Inge, wrote movingly in the Guardian about his wife's battle with cancer which caused her death at the age of only 51, and explained why he was glad that the 'choice' of assisted suicide had not been available.
The chief rebuttal to Lord Carey came from current Archbishop of Canterbury Justin Welby, whose unambiguous denunciation in the Times (£) of legislation which would cause a 'sword of Damocles' to hang over seriously ill patients was in part informed by the deaths of both a friend and his own child. Archbishop Welby was one of 24 faith leaders to sign what was described asan 'unprecedented' message to Peers calling for the Bill's rejection.
Another signatory, Chief Rabbi Ephraim Mirvis, wrote in the Telegraph that while he appreciates 'the honest and empathetic intentions that have led Lord Falconer to propose, and others to support, the Assisted Dying Bill... Jews are particularly sensitive to the moral dangers of euphemism. We have seen prejudice cloaked in principle, bias masquerading as high-mindedness...'
Such concerns bring us full circle, back to those of disabled people who have been so prominent in speaking out against this Bill. Disabled inclusion activist Simon Stevens wrote in theHuffington Post that the Lords' handling of this issue and the weight they give to such proposals' flaws 'is a test to see how serious the country is in relation to the full inclusion of disabled people as equal citizens'. We agree, and we hope that people will continue to speak out in the months to come.
We were among a number of newspapers and websites to publish the testimony of the late Christopher Jones, whose experience of despair when terminally ill caused him to reflect towards the end of his life on the valuable protection given him by the law; his widow Jenny shared her perspective in the Guardian alongside Dr Ian Basnet, who is tetraplegic. Similarly, we shared Matthew Schellhorn's account of caring for his terminally ill mother and his gladness at not having had to discuss the substance of Lord Falconer's Bill with her.
Disabled people, especially under the auspices of Not Dead Yet UK, have been at the forefront in recent weeks. The Times (£) interviewed 'Britain's best-known disabled actress', Liz Carr, who said 'some on my own medical team have underestimated my life expectancy. It is very common for someone with a disability to be told they are not likely to live until a certain age — and for them to carry on living.' Disabled blogger 'Spoonydoc' noted that few people acknowledge the inconsistency between supporting 'assisted dying' because of the experiences of people like Tony Nicklinson - who would not have qualified - and at the same time claiming that the Bill is closely defined and not open to extension. Hannah, who has inflammatory bowel disease, pursued a point also made by Spoonydoc: it is often wrongly assumed that those who oppose a change in the law have insufficient awareness or experience of these issues and would change their minds if they had.
In an engaging exchange, MND sufferer Pam and her friend Sian considered that a 'choice' like 'assisted dying' would put people in a 'constant position of having to say no. What we need is support for living, not support for dying', while Penny Pepper, writing in the Guardian, challenged readers by asking them to consider how their reaction to her suicide bid at 19 changes when they know that she had suffered from a chronic illness since childhood. Colin Harte, who for many years acted as carer to his friend Alison Davis, spoke to ITV (1m13) on a similar theme, picking up on the weakness of prognoses and people's ability to find purpose, value and hope in life - endangered by Lord Falconer's Bill.
Paralympian and crossbench Peer Tanni Grey-Thompson featured across the media, including the BBC (video), New Statesman and Telegraph. She noted that despite her many successes, 'people come up to me and say "I wouldn't want to live if I was like you".'
Composer and fellow Peer Andrew Lloyd-Webber discussed the point at which his mother had expressed a will to die - convinced that she had become a burden - five years before eventually dying of cancer, and his own battle with depression during which he 'actually got the forms for Dignitas. With hindsight, it was stupid and ridiculous, but I couldn't think what to do.' Fellow member of the Lords and senior palliative care physician Ilora Finlay spoke about her and her mother's experience, similar to Lloyd-Webber's and doubtless to countless others around the country - her mother, four years before her death from breast cancer, considered herself to be a burden but with love and support, she rediscovered her own value and enjoyed 'among the best [years] of her long life'.
Caring for thousands of patients over a career will give healthcare professionals a unique insight into the reality of dying, but many will also have personal experience of serious health issues. As GP Dr Mark Houghton told the Yorkshire Post, 'I am in the strange position of being a doctor who has known what it's like to be made miserable - suicidal even - by chronic pain.' Baroness Hollins, past president of the British Medical Association and the Royal College of Psychiatrists, spoke in the course of a tour de force for the Daily Mail of a friend with motor neurone disease who confided to her shortly before death of how precious his final months had been - having said six months before that he would gladly take a legally prescribed drug.
Lady Hollins was writing in part as a counterpoint to former Archbishop of Canterbury Lord Carey's recently declared support for a change in the law, and his views were soon shown to be out of step with those of serving faith leaders. The Bishop of Worcester, John Inge, wrote movingly in the Guardian about his wife's battle with cancer which caused her death at the age of only 51, and explained why he was glad that the 'choice' of assisted suicide had not been available.
The chief rebuttal to Lord Carey came from current Archbishop of Canterbury Justin Welby, whose unambiguous denunciation in the Times (£) of legislation which would cause a 'sword of Damocles' to hang over seriously ill patients was in part informed by the deaths of both a friend and his own child. Archbishop Welby was one of 24 faith leaders to sign what was described asan 'unprecedented' message to Peers calling for the Bill's rejection.
Another signatory, Chief Rabbi Ephraim Mirvis, wrote in the Telegraph that while he appreciates 'the honest and empathetic intentions that have led Lord Falconer to propose, and others to support, the Assisted Dying Bill... Jews are particularly sensitive to the moral dangers of euphemism. We have seen prejudice cloaked in principle, bias masquerading as high-mindedness...'
Such concerns bring us full circle, back to those of disabled people who have been so prominent in speaking out against this Bill. Disabled inclusion activist Simon Stevens wrote in theHuffington Post that the Lords' handling of this issue and the weight they give to such proposals' flaws 'is a test to see how serious the country is in relation to the full inclusion of disabled people as equal citizens'. We agree, and we hope that people will continue to speak out in the months to come.
Watch vox pops from the rally in Westminster
Wednesday, 16 July 2014
The ex-archbishop and the disabled
George Carey was the last but one archbishop of Canterbury. He hit the headlines on Saturday by performing a volte-face on assisted suicide in an article in The Daily Mail. Some speculated that it was a deliberate attempt to steal the thunder from the present incumbent who was about to achieve a notable break-through in the matter of welcoming women bishops without splitting the Church of England. I don't subscribe to that view. I believe, though I've never met him, that Lord Carey is well-intentioned.
I understand that he can be stubborn. However I do wish he had listened what the disabled community is saying. Not Dead Yet sums it up simply.
I understand that he can be stubborn. However I do wish he had listened what the disabled community is saying. Not Dead Yet sums it up simply.
"The key messages we want to get across are
- We are deeply concerned that a change in the law will lead to disabled people – and other vulnerable people, including older people - feeling under pressure to end their lives.
- The issue tells us a lot about public attitudes towards disabled people.
- Why is it that when people who are not disabled want to commit suicide, we try to talk them out of it, but when a disabled person wants to commit suicide, we focus on how we can make that possible?
- We believe that the campaign to legalise assisted suicide reinforces deep-seated beliefs that the lives of sick and disabled people are not worth as much as other people’s. That if you are disabled or terminally ill, it’s not worth being alive.
- Disabled people want help to live – not to die."
I was sufficiently disturbed to send him an email. I'm not surprised that I've had no reply, but I don't like to waste my efforts. So here, suitably edited, is what I wrote.
Dear Lord Carey
No doubt you are receiving a blitz of correspondence at the moment! But I hope you will take time for this one.
I'm the youngest son of your predecessor but one at St Nick's in Durham, John Wenham. Indeed I was born while he was vicar there. Now I have Motor Neurone Disease (PLS variant). I don't know how long I have to live, but know the sorts of things that lie ahead for me and my family. I am now utterly dependent on my wife for my survival and for my day-to-day needs.
I have consistently admired your doughty defence of the Christian values underpinning our society. So I was sad to hear on the news last night of your intervention in the assisted suicide debate. Clearly I don't know what Damascene experience you had to change your mind, whether it was meeting Tony Nicklinson or other experiences in your pastoral ministry. When I met Tony Nicklinson for a morning, I came away immensely saddened that he was unwilling to recognise the love with which he was surrounded, both from his wife and daughters and from his carers. His life was limited, but it had great value - as does all life. Of course, neither he nor Paul Lamb would have been helped were Lord Falconer's bill to pass into statute, with its attempted safeguards. That would come later if Lord Falconer's Commission on Assisted Dying saw its implied conclusion fulfilled: 'we do not consider that it would be acceptable to society at this point in time to recommend that a non-terminally ill person with significant physical impairment should be made eligible' (emphasis mine). As a terminally ill person with significant physical impairment but with hopefully more than six months to live maybe I'll be next in line. You cite Tony and Paul as evidence for necessary change. Would you want to legislate also for cases such as theirs?
In your article you write movingly about our Lord's compassion for the suffering around him. However I see him only offering healing and enhanced quality of life to those he met, never death. Can it be the Church's role to advocate suicide instead of care to the end? Isn't that what compassion really means - suffering alongside? Would Jesus ever have abrogated the sixth commandment, which means, I understand, killing intentionally or through carelessness or negligence? It seems to me that we are much more faithful to Jesus when we are involved in healing diseases and in palliative care.
I don't doubt that Lord Falconer, the folk at Dignity in Dying and yourself are motivated by pity for those in pain, which is of course good. But there is also a strong agenda for personal autonomy, the right to choose. As Terry Pratchett put it, 'My life, my death, my choice.' Life, and death, is more than that though, isn't it? Rights go with responsibilities. If my insisting on my right endangers others in any way, then I must forego my right.
I could write more about the ambiguities of the 'safeguards' in the bill, but I will simply urge you to hear the voice, in the debate, of those who see the dangers of opening this particular door for the disabled, the elderly and powerless vulnerable. I hope you might consider, if not voting against the bill, abstaining and recommending an official royal commission to consider all the issues of end-of-life care, before the pressures of austerity and emotion push us into a position which we later come to regret.
Yours sincerely
I was chatting on line to psychologist friend yesterday, and she said: "These things occur to me: 1. Many psychotherapeutic approaches theorise about the threat to our sense of self posed by death (a threat which exists regardless of our physical health state). It seems to me that this Bill is actually an unconscious response to this fear (dressed up as something very different!). However, in my experience, avoiding and bypassing fear will only increase it. This, I think, is the connection to 'the slippery slope'; 2. It is premised on something falsely believed to be absolute (6 months' prognosis); 3. It does not, as you point out, provide an understanding of the complexity of informed consent which is so dependent on many factors...social, societal, emotional, physical, intellectual etc...." Nicola's first point was new to me and rings true. Trying to avoid the fear of death by bypassing it will only reinforce it.
The Bill is debated on Friday. I guess that's the time for all the faithful to get praying and all the mobile to get protesting.
The Bill is debated on Friday. I guess that's the time for all the faithful to get praying and all the mobile to get protesting.
Finally something I heard yesterday about our approach to suffering: "Pain is inevitable; misery is optional." We don't have to choose misery and pessimism whilst facing the reality of pain.
Tuesday, 15 July 2014
What's wrong with the Falconer Bill?
On Sunday I was asked for my views on ex-archbishops
endangering the lives of disabled and ill people. Well, it was the World Cup
and I needed a day off; so I promised something on Monday. (Sorry - missed my
deadline!) And this, I hope, will be it. Actually rather than knocking two
well-meaning old codgers, I think I’ll write about about Lord Falconer’s
deceptively innocuous-sounding bill on “assisted dying” whose second reading
takes place in the House of Lords on Friday.
It’s
summarised in Parliamentary business papers as “A Bill To enable competent
adults who are terminally ill to be provided at their request with specified
assistance to end their own life; and for connected purposes.”
A commentator
summarised its contents like this: “His
bill would make it legal for doctors to help mentally competent adults with
less than six months to live to kill themselves. Two doctors would need to
agree that a patient met the criteria and the option would not be open to
minors, people without mental capacity or those who are not terminally ill.
“The final step would involve a doctor (or nurse) hand-delivering lethal
drugs to the patient at a time and place of their choosing and staying with
them while they took the drugs and until they were dead.”
I’m indebted also to Peter Saunders for the following three headings. He is
not to blame for the comments thereafter, which are mine.
It’s unnecessary
The law
The present Suicide Act makes it illegal to aid, abet, counsel or procure the suicide of another, or an attempt
by another to commit suicide, with a maximum
penalty of no more than 14 years in gaol. The law is hedged round with
safeguards such as prosecutions being carried out only by the Director of
Public Prosecutions (within compassionate guidelines) and all the processes of
jury trial and appeals. The law as it stands enshrines absolutely the
protection of life, but allows the leeway of public interest and compassion, in
other words, Portia’s principle of justice and mercy. The fact that in the 53
years since the Suicide Act was passed there has been no contentious court case
is evidence that it’s not a bad piece of legislation.
End of life care
An
aunt-sally propagated by the assisted-suicide lobby is that at present many
doctors in fact covertly kill their terminally ill patients. I think they refer
to the double effect of ceasing treatment or administering drugs with the
intention of mitigating symptoms and alleviating pain. There is a category
difference between that intervention and what the bill proposes (from
understandable motives). A doctor friend of mine commented yesterday:
“Desmond Tutu, as quoted..., is completely
misunderstanding the issue of assisted dying and my worry is that the bill will
be passed based on these misunderstandings.
“Scenario 1) A person is terminally ill. It is their time to die and
further treatment is futile and unnecessarily prolongs suffering (e.g. Repeated
courses of chemotherapy, or the intensive care treatment of Nelson Mandela
described in this article). We don't need a change in law for this. We need
sensible, compassionate care.
“Scenario 2) A person is terminally ill and has a 'settled wish' to
die. Two doctors therefore agree to end that persons life by way of
administering drugs. This is what the bill proposes.”
The accusation that palliative care specialists intend to kill their patients rather than ease their last hours has to my mind a hint of malice about it.
Hippocratic
oath v necessity
Nursing = caring |
As
I understand it, the aim of the bill is for health professionals (such as
doctors and carers) to be allowed to take someone's life or to assist in their
suicide: so for example allowing my doctor to administer a lethal injection at
my request. That opens the door to doctors ceasing to be healers and carers,
and becoming dealers in death. That is one of the most valuable safeguards in
the DPP's Guidelines on Prosecution in respect of Assisted Dying, preventing
health professionals helping someone taking their own life. I guess that's why
the BMA is against a change in the law. As events proved, in Tony Nicklinson’s
case for example, there was no necessity for a doctor to end his life. He could
refuse treatment and ask for only symptom control and pain relief.
It’s unsafe
The bill itself
There are many aspects of the bill itself which are glaringly unsafe. For
example the six month cut-off point: as any
honest doctor will admit, such a precise prognosis is notoriously hard to make
- witness the case of the “Lockerbie bomber” Al Megrahi being released having
been given three months to live by the country’s leading cancer specialist, Professor Karol Sikora, and enjoying another three years of life back home. I know
a number of people, such as the late Alison Davis, who are profoundly grateful
that an early exit was not open to them, since they went on to live many more
years of fulfilled life. For example the assessment of mental competence and settled desire simply by two
doctors. There is no specifying of who the doctors should be, what their
qualifications should be (for example psychiatrists). Presumably they would be
doctors in favour of assisting death, and the prospect presents itself of the
situation emerging in Holland of mobile euthanasia clinics with a couple of
doctors ready to sign the necessary papers on board. For example, the requirement of informed consent. Does that mean
being given a leaflet about local hospices, or palliative care packages? In my
experience there’s no real alternative to visiting and staying in a place where
you can experience care from the real experts.
Its implications
The proponents of assisted suicide often pillory the idea of a “slippery
slope”. But experience shows it is unwise to do so. The Benelux countries and
Switzerland (the only European nations with voluntary euthanasia) have
witnessed a steady relaxation of the safeguards originally in place there. In
the two US states where assisted suicide exists the number has steadily
increased. Times of austerity (like the Depression of the 1930s) have seen a
rise in euthanasia - see “Action T4” in Wikipedia
(http://en.wikipedia.org/wiki/Action_T4). Disturbingly one can hear hints of
this in Desmond Tutu’s “But why is a life
that is ending being prolonged? Why is money being spent in this way? It could
be better spent on a mother giving birth to a baby, or an organ transplant
needed by a young person. Money should be spent on those that are at the
beginning or in full flow of their life.”
Peter
Saunders’ comment is pertinent. “The right to die can so easily become the duty to die and the
generation that has killed its children through abortion could very easily
become that which is killed by its children through euthanasia and assisted
suicide. Add in economic crisis, debt, cuts in health and welfare and the
argument gains force by playing on popular prejudice against those perceived to
be a drain on families and the state.”
Lord Carey cited cases of permanently disabled people to explain his
change of mind. Yet they of course are not covered by this bill. One see how
inevitably the argument will be, “Why not these people?” “And why not teenagers
younger than 18?” “Why not those with a longer-term terminal illness? Those
with a chronic painful condition?” And so euthanasia is upon us. Disabled
campaigners such as Tanni Grey-Thompson and Baroness Jane Campbell are clear in
warning of this danger.
A further real danger is that of the disabled and chronically
experiencing explicit or implicit or self-generated pressure to ask for
euthanasia. Personally I think the last is the most likely, as the disabled, chronically
ill and elderly seek to alleviate the expense and anxiety of those who care for
them, whether family or state. And it would also be naïve to underestimate the
amount of elder abuse in this country.
It’s unethical
Compassion
Stephen Hawking who like me has a rare form of MND not long ago
propounded what I call the “pet theory”. It goes something like this: we have
our pets put down when they’re suffering. Surely people deserve better than
that? However it’s also true that we have them put down because they become
incontinent, because their vet bills rocket and because, to be blunt, they’re
no longer afford us pleasure. In other words, it’s more about us than the pet.
Compassion, it seems, is often confused with pity. The true and original
meaning of compassion is to suffer with, to stay with someone in their pain and
darkness. It doesn’t mean to put them out of their misery; it doesn’t mean
concurring that their life has lost its value; it doesn’t mean euthanising
them. That’s a cheap imitation of compassion. True compassion is costly
emotionally and often financially.
Investment in universal best palliative care is the true expression of compassion, not the offer of a cocktail of barbiturates, which is a perversion of therapy.
Defence of the vulnerable
"You are not a burden." |
Another mark of a civilised society is its attitude to the weak and
vulnerable. Eugenics gained traction in the early 20th century, wanting to
produce healthy strong and racially pure men and women. The weak went to the
wall. I'm not concerned for myself - although I don't look
forward to the process of dying - but I am concerned
for the vulnerable, the disabled who don't have a voice, for the elderly who
are at risk through dementia or frailty - for those who are increasingly
regarded as a burden on their
families, on society, on our nation's resources. It's those people our laws
should protect. Ironically Lord Falconer’s bill seems to me to be about people
who are far from vulnerable. It’s about determined people concerned to maintain
control over their lives come what may.
Rights
Rights
only come with responsibilities. My right to life, or to death, can't be
isolated. If my demanding the right to die endangers the lives of others, then
my responsibility to them trumps my choice. You can’t have a community, you
can’t have a society where each person insists on his or her rights. Rights, in
my view, are not possessions. They are what we afford each other. The danger of
this legislation is that it begins to remove the right to life of the many to
accommodate the right to choose of the few.
Value of life
Neither is life a possession. Life is bigger than us. We are a part of
life. We are granted a share in the adventure which is life. In financially
straitened times, such as we are told we are now in, there is a real test on
the horizon: what do we value more - money, or life? That will be the measure
of our society. I know what I would prioritise.
The value of life was long ago encapsulated in a simple principle, “You
shall not murder”, a word which includes intentional killing, and also from
carelessness or negligence. In other words life, of whatever perceived
“quality”, is precious and to be protected.
Lord Falconer’s bill, well intentioned
though it may be, is in my view unsafe and opens the way to consequences which,
though denied, are entirely logical extensions of the breach in this principle.
Tuesday, 8 July 2014
An honest video testimony
Almost a year ago I met a gay Christian. It was not the first time that I'd met gay Christians by any means! However this encounter was crucial in the evolving of my views on the subject, as readers of this blog will be aware. I realised that it was my problem, not hers. People like me were the ones who inflicted pain and alienation on people like her, who left no room for her to be who she was in the family of the Church. My deep regret for that is why I now recommend things which help both gay and straight people hear each other.
A twenty-year old student and a sketch pad on a beach. Using simple cartoons, he recounts his upbringing as part of a loving Christian family. He goes through the usual children's and youth groups which are part of most churches. It is one evening at the youth group, that he plucks up the courage to raise a question that's been troubling him. He poses it about "a friend". "I've got a friend, and he's gay. What do I do?" After an awkward silence, he is told in no uncertain terms: "YOU CAN'T BE GAY AND CHRISTIAN". And of course he is his gay friend.
A twenty-year old student and a sketch pad on a beach. Using simple cartoons, he recounts his upbringing as part of a loving Christian family. He goes through the usual children's and youth groups which are part of most churches. It is one evening at the youth group, that he plucks up the courage to raise a question that's been troubling him. He poses it about "a friend". "I've got a friend, and he's gay. What do I do?" After an awkward silence, he is told in no uncertain terms: "YOU CAN'T BE GAY AND CHRISTIAN". And of course he is his gay friend.
This is the beginning of a short documentary made by James Lawbuary called A Video Testimony, described as "The story of a simple man who was changed by an almighty God". Almost the entire film is shot over his shoulder as he vividly recreates his struggles with the tension created by the dogmatic assertion, which bore no gainsaying. His experience echoes that of many in his position - many tears, many prayers, isolation and alienation from any faith he had. I won't to spoil the plot, but the change of the tagline takes place unexpectedly on a beach one evening on a church weekend away. It is a dramatic encounter with Jesus himself who speaks to him.
Only at the end of the film as James packs up his art equipment does he turn round and we see him walk away. It is as if he has found resolution and found himself. And we see him as a person, an ordinary young man like anyone else, and like everyone else made "in the image of God" and loved by Christ - as he is.
What is impressive about this film is its transparent honesty and its understated conviction. It has a lovely statement of the God's universal good news at its heart. Watch it here: A LGBT Video Testimony. I thoroughly recommend it.
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