Diary of a Donkeybody
MND Musings - This is a record of a chronic illness, Primary Lateral Sclerosis, a Motor Neurone disorder, like a slow MND / ALS. My body may not be very cooperative; in fact it's become as stubborn as a donkey, but I'm not dead yet.
Tuesday 3 September 2024
Thank God for human beings
Tuesday 16 July 2024
It's not coming home
Someone close to me observed that the excitement seemed a trifle excessive because it was 'only the European Cup'! I took their point, but then I'm old enough to remember the 1966 World Cup. Indeed I remember exactly where I was when the result came through, not in the UK in order to witness Kenneth Wolstenholme's famous commentary, 'They think it's all over.... It is now.' Is it possible today, I wonder, for anyone to score a hat-trick at international level? Because that's what we need - not just England, but generally. I heard Chris Sutton talking of 'the beautiful game' of which he said, in contrast to England, Spain was an exponent. The English team certainly has a handful of very skilful footballers, but they, in company with most highly paid male players, do not play beautifully.
I have some suggestions to restore the beauty to the game:
• Get rid of VAR (Video assistant referee)! I've written about the difference that would make before: see here VAR. It makes for more grown-up sportmanship.
• Give yellow cards for shirt-tugging, tripping and diving;
• Red cards for dissent, i.e. disputing the referee's decisions, and for professional fouls, i.e. cynical fouls designed to prevent possible goals.
• And off the field more generally don't pay already wealthy players to don the national shirt. To have our teams appearing simply for the privilege of representing the nation, or even - dare I suggest? - for the love of their country, would prevent them being mercenaries but afford them a genuine reason for respect, and even possibly to merit, win or lose, the award of one of those absurdly coveted minor honours of imperial days. If that's not good enough for one of our 'star' players, too bad. No one is indispensable.
Talking of honours, it does seem to me that Gareth Southgate has been the best manager of the England team since Sir Alf Ramsey, who managed his team to World Cup victory in 1966. Whether or not he chooses to remain in post for another two years, he for one deserves recognition for his contribution to the game (and beyond) in this country.
PS Sadly, I see that he has now resigned. Well, I suppose that like Jürgen Klopp he has been wise, having restored his team's fortunes, in taking a break from the almost unendurable pressure placed on managers by media and public alike.
PPS How absurd for example for fans to spend tens of thousands of pounds, as I gather some did, to obtain a ticket to watch the match - and how wicked of touts to exploit such misplaced dedication!
Friday 21 June 2024
A very wise woman
Well, as I promised myself in February ('ITV, please repeat Breathtaking'), I have now read Rachel Clarke's wonderful and moving book Dear Life. It is what its subtitle says, 'a doctor's story of love and loss'. As a hospital doctor, she chose to specialise in palliative care. As someone said, she's the kind of doctor we'd all want at our sides when we're dying. Her profession is truly put to the test when her dearly loved father, a local GP of the old school, who is her inspiration, is diagnosed with terminal cancer. Her account is both heartbreaking and life-affirming. Significantly, she chooses to keep her counsel on the vexed subject of assisted dying - as does the subject of this piece, Dr Kathryn Mannix.
I first came across Dr Mannix, when she gave a very short talk on BBC Radio 4 in 2018. Her title was 'Dying is not as bad as you think'. It was a simple description of the normal process of dying - and it was not as bad I'd thought. If you've not heard it, it's certainly worth listening to. A few weeks ago she gave an interview to a Financial Times journalist, Emma Jacobs, in which she talked about herself, her books and about "ordinary dying". It's so much about the listening. Of course the journalist brings up the hot topic of assisted dying. I've previously commented on Esther Rantzen joining the advocates of legalising assisted suicide. She's since been joined by Keir Starmer, and most recently by Bake-Off judge, Prue Leith. Dr Mannix is more circumspect:
"Mannix fears for the texture of the debate. 'We can be opponents about an issue and agree with far more than we disagree about, but the point on which we disagree is so important to us . . . Increasingly [political debate] is about point-scoring.' It means that we fail to include nuanced conversations on palliative, social and healthcare. 'We’re not hearing any of that. We’re just having a ding-dong about where the law sits.'” She particularly fears for the sick and the elderly, who might have their peace of mind destroyed every day with the thought they are yet again being a burden to their family. (And I would add an unwanted expense to the state as well.) As her BBC talk taught me, dying is not as bad we are given to think.
More recently she's given a very personal interview in the BBC Outlook programme:
https://www.bbc.co.uk/sounds/play/w3ct4r4d. Listen to it! It's very reminiscent of Rachel Clarke's Dear Life. And it's magnificent.
"There’s something sad about the idea that the only way we can help [make] dying better is to be dead." Ordinary dying is even better. What wisdom!
Monday 11 March 2024
An electoral dilemma
As my readers will have gathered, I have reservations concerning legalising assisted suicide. At the last general election, at our local hustings I asked the candidates their views. Rather uninterestingly, all four of them agreed with the idea that people should be able to choose the time of their death, when they were in terminal pain.
😏😎😌🙊
That didn't help me decide, and so I voted with my old inclinations. However the urbane Conservative, David Johnstone, was comfortably elected. But if the same is true this time, I shall face a dilemma. In the wake of Esther Rantzen's comments, Sir Keir Starmer, who is likely to the next Prime Minister, declared that he would give some government time for a private members' bill to legalise assisted dying. And so I wrote to the leader of the opposition.
"Dear Sir Keir
"I clearly don’t know where our election candidates will stand on the issue, though I know our present MP’s views, but I view a change in the law dangerous, both from the precedence set in other jurisdictions and the pressures it would put on the vulnerable, and a betrayal of our past record of upholding the sanctity of life. I know you won’t change your mind in an election year when polling (which depends on the framing of the question - for example ‘Would you prefer a Labour or a Conservative government?’) seems to indicate a majority of voters sharing your view.
Wednesday 28 February 2024
ITV, please repeat 'Breathtaking'
All photos ITV |
There are very short counter bursts of complacent politicians (such as a Prime Minister announcing he wouldn't stop shaking people's hands, and a smiling Chancellor handing out dishes in a restaurant at the announcement of the "Eat out to help out" scheme) blandly pronouncing that everything is under control while we watch the continuing reality of the situation in the hospital wards.
(The following paragraph has a number of plot spoilers, and so if you've not watched it you may wish to skip it, though the real thing is infinitely more powerful and moving.) This episode had many scenes which stick in my mind. For example, Ant, the registrar, pleading by phone with his vulnerable mother to stay at home until she can get the promised vaccine, and her regurgitating social media stories of the mythical disease, empty hospitals and dangerous vaccines; and later Abbey running the gauntlet of shouting and spitting Covid-deniers at the hospital doors on her home after an emotional and exhausting shift. Then
there was the scene of Emma, a student doctor, whom Abbey finds
crouching in emotional collapse and the two of them together silently
sharing their intolerable grief. There's the scene of Abbey smoothing
the brow of a dying terrified patient, and of her having to explain to
the husband of a Covid patient with MS that if she deteriorates her
preexisting conditions means she won't be moved to Intensive Care (on
the assumption that her chances of recovery are compromised - thank God I was spared that, I thought). At other times we see her desperately and furiously arguing with the administrator and senior doctors hidebound by NHS and Government rules and guidelines, and later we witness her whistleblowing radio interview in which she reveals the real situation in hospital dealing with Covid and risks disclosing her name and job.
Sunday 7 January 2024
A clarification
I was upset today to find an email thanking me for "speaking out so clearly" "in the Christian institute’s weekly email". I don't remember speaking to them, I thought. And so I looked them up on line. I hadn't spoken to them. And if they had asked me to comment on the subject of assisted dying, I would probably have politely declined.
Why?
First of all, it is, I understand, basic journalistic courtesy to ask an individual before you name them in a story. And I wasn't approached. Secondly, examining the Christian Institute's website confirmed to me what I vaguely recalled, i.e. that it campaigns on certain issues with which I am not in sympathy and represents an extremely conservative type of Christianity which I no longer hold, if I ever did. For one example, it appears homophobic, which for me is the antithesis of the Christian good news - which this weekend we celebrate is for all people. I suspect that I could not in all conscience subscribe to all its tenets.
However I do acknowledge that I wrote a letter to the Guardian on the subject of assisted suicide and therefore put my views in the public domain, as they are also, of course, on my blog. So I can't complain, but simply dissociate my views from those of the Christian Institute - and hope that if they ever want to quote me again they are polite enough to contact me first.
Saturday 6 January 2024
Where is love?
Mike Chapman 'Christ Child' |
HOLY INNOCENTS DAY
The first words we were taught in Latin
Were amo, amas, amat, amamus, amatis, amant:
Verb, transitive; meaning love.
Outside the church on Trafalgar Square
Stands a great block of Portland Stone
With a carved new-born baby soft and smooth
Lying not in Christmas card manger
But on a rough bed of rock.
Round the plinth is inscribed:
‘In the beginning was the word…
And the word became flesh
And dwelt among us’.
Look once more at the naked baby
His cord has not even been cut
He lies without defences and alone
Can this truly be the Word made flesh?
Naked new borns lie in Mariupol’s wreckage
Mothers weep for their Infants in al-Shifa
With ash grey dust their only shroud
‘What kind of a country is afraid of hospitals
and maternity wards and destroys them?’
Is it leaders lusting to unleash
Their fear full fury while they can?
Wounded they see not neighbour but stranger,
Not brother but alien, animal, pest
To be butchered, mortared, missiled from our land.
We are the chosen inhabitants of this place
Pity we can’t afford, we dare not open our eyes
To the mothers drowning in agony
To children scraping away the rubble
Wailing for lost baby brother Isa
Loved in Gaza’s hell. Are you here, Emmanuel?
28th December 2023